Available in hardcover and paperback. Now in five languages!
Available in hardcover and paperback. Now in five languages!
Insights for reading the book Extraordinary! to children without rare diseases. By Kara Ayik, educator, parent and co-author of Extraordinary! A Book for Children with Rare Diseases.
A video presentation by Kara Ayik, educator, parent and co-author of Extraordinary! A Book for Children with Rare Diseases.
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Video from Kara & Evren Ayik
Written collaboratively by mother and son, Extraordinary! A Book for Children with Rare Diseases opens up a child-friendly discussion about identity, inclusion, and self-concept in light of the challenges and silver linings of living with a rare disease. The gentle lessons draw on the co-author's firsthand experience of growing up with an ultra-rare disease and offer young readers a framework for understanding personal identity and how their rare diseases can help shape it in positive ways. Family members and caregivers are invited to share in this conversation and to customize the reading according to each young reader’s developmental needs.
© 2021 Evren & Kara Ayik. All rights reserved.