Courageous Parents Network is a non-profit organization and educational platform that orients, empowers and accompanies families and providers caring for children with serious illness.
Award-winning publication serving the special needs community.
Helping children and their families living with a neurologic condition receive the best quality of care by providing information, education, and one-on-one support when it’s needed most.
Dedicated to recognizing, promoting and addressing the life-long and ever-changing concerns of millions of siblings of people with developmental, health, and mental health concerns.
Five rare disease toolkits every patient and parent should read.
Our mission is to promote and enhance the emotional and mental well-being of individuals with facial differences and their families.
A non-profit organization dedicated to changing the faces – and transforming the lives – of children and adults with facial differences.
The MAGIC Foundation is the leading non-profit organization committed to reducing the emotional and physical impact of growth-related endocrine disorders for individuals of all ages.
Once Upon a Gene is a podcast that explores the world of raising children with disabilities and rare genetic disorders. Featuring interviews with fellow parents, therapists, doctors and anyone else who wants to share their story.
The most rare stories in the world stream to your living room TV. The Disorder Channel is available free to the millions of homes with an Amazon Fire TV or Roku.
A research study funded by the National Institutes of Health. Bringing together clinical and research experts from across the United States to solve the most challenging medical mysteries using advanced technologies.
Explore resources on Medical Trauma from the National Child Traumatic Stress Network (NCTSN).
Video from Kara & Evren Ayik