Resources for Educators

Insights for reading the book Extraordinary! to children without rare diseases. By Kara Ayik, educator, parent and co-author of Extraordinary! A Book for Children with Rare Diseases.

 A free, accredited course from Global Genes, designed to educate the next generation of healthcare professionals and patient advocates 

 This lesson plan will raise awareness in your class of real people living with disabilities and rare diseases as part of a global campaign for Rare Disease Day on the last day of February. The lesson incorporates various active learning techniques to teach a message of empathy and inclusion towards others.  

 Rare Lessons is a Sarepta-led program intended to promote the development and implementation of rare disease lessons in the K-12 classroom. 

A lesson plan for grades 9-12. Students learn how mutations in a gene can cause disease by simulating inheritance patterns and by researching disorders and presenting their findings.